Hello, My name is Kia Lien Emma~Lee. I was born
on May 6, 2004 with Trisomy 13. I lived for 17 hours and went to heaven on May 7, 2004. My Mommy and Daddy knew
I had Trisomy 13 when my Mommy was 24 1/2 weeks pregnant with me. The doctor's wanted my Mommy and Daddy to terminate
the pregnancy but they decided that they wanted to get to know me and that only God would decide what was going to be my fate.
My Mommy and Daddy want other parents to know what it was like knowing that I had Trisomy 13 and they hope to help anyone
who thinks there is no hope for their baby.
My Mommy wanted to share our experience with Trisomy 13 so that she could help other Mommies and Daddies
get through the diagnosis of Trisomy 13 with their babies. We have lots of experience to share and it can sometimes
be scary and lonely. Doctors can be very clinical and are can be less sensitive about the experience of Trisomy
13. My Mommy found that she received a lot of information through other Mommies and Daddies who had experienced
Trisomy 13. There are other Trisomy 13 babies and children around the world who are still alive. The parinatologist
told my Mommy and Daddy that "death was imminent" and that "Trisomy 13 babies do not live". My Mommy has found these
statements to be generalized and that in fact there are surviving Trisomy 13 babies and children.
Gaymond and I would like to thank Liam for Kia's song... he did a wonderful job and we are so blessed to have a
song for her! Thank You Liam!
|Our Precious Angel Kia
Click Kia's picture above to go to her MSN site.
What Is Trisomy 13?
Trisomy 13 ( Patau's ) Syndrome is a genetic disorder (chromosomal defect) which occurs before birth. It
affects approximately one in 5,000/10,000 live births. Almost half of the affected infants do not survive beyond the
first month, and about three quarters die within 6 months.